Imperial College London is the sponsor for the iHealth-T2D Study in the United Kingdom. We will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly.
Imperial College London will keep identifiable information about you for:
– 30 years after the study has finished in relation to data subject consent forms.
– 30 years after the study has completed in relation to primary research data.
Your usual statutory rights to access, change or move your information are limited, because of exceptions applicable to some types of research, and also because we need to manage your information in specific, lawful ways in order for the research to be reliable and accurate.
You can find out more about how we use your information by contacting the iHealth-T2D research team at firstname.lastname@example.org.
Imperial College London will collect information about you for this research study from NHS Digital, ONS, NHS Scotland and NHS Wales. We will share your NHS Number with them, so that we can link to your medical records and death certificates, which are regarded as a special category of information. This may include access to your medical notes and other health-related records now and in the future, even if you can no longer make decisions for yourself, or after your death.
When you agree to take part in a research study, the information about your health and care may be provided to researchers running other research studies in this organisation and in other organisations. These organisations may be universities, NHS organisations or companies involved in health and care research in this country or abroad. Your information will only be used by organisations and researchers to conduct research in accordance with the UK Policy Framework for Health and Social Care Research at https://www.hra.nhs.uk/planning-and-improving-research/policies-standards-legislation/uk-policy-framework-health-social-care-research/.
Your information may be used for research in any aspect of health or care, and may be combined with information about you from other sources held by researchers, the NHS or government. Where this information could identify you, the information will be held securely with strict arrangements about who can access the information. The information will only be used for the purpose of health and care research, or to contact you about future opportunities to participate in research. It will not be used to make decisions about future services available to you, such as insurance.
If you wish to raise a complaint on how we have handled your personal data or if you want to find out more about how we use your information, please contact Imperial College London’s Data Protection Officer via email at email@example.com, via telephone on 020 7594 3502 and via post at Imperial College London, Data Protection Officer, Faculty Building Level 4, London SW7 2AZ.
If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner’s Office (ICO). The ICO does recommend that you seek to resolve matters with the data controller (us) first before involving the regulator.